Cure Black Bone Disease
Click
on gallery for pictures and videos, updated nearly every day. Check out
our updates too, with news of our campaign and stories from our
patients twice a week.
Hi. My name is Nick Sireau, and I’m the father of two boys with a rare but devastating disease.
Alkaptonuria, or AKU for short, was the first genetic disease to be discovered more than 110 years ago. Despite this, it still has no cure, and the medical world remains largely unaware of its existence and impact on everyday life.
AKU is also known as Black Bone Disease. This is because an acid in the body accumulates at 2,000 times the normal rate, attacking the bones and turning them black and brittle. It causes severely debilitating osteoarthritis, heart disease, and other serious health complications. Patients become increasingly disabled as they get older.
But we believe we have found a cure.
And that’s why I’m reaching out to you today.
Three years ago, I gave up my job in order to devote myself, full time, to finding a cure for my kids. During that time, I’ve worked with teams in Liverpool, the United States and across Europe to plan a clinical trial.
We have found a very promising treatment: a drug called Nitisinone. If given early enough in life, it’s effectively a cure. The scientists we work with have proven this in their laboratory studies.
The real challenge is proving that this drug works in a clinical trial, in order to license nitisinone for use in AKU.
The cure will then become a reality.
All we need now is the money to bring the patients in.
But we can't do it without your help.
We’ve raised enough to pay for all the medical tests and some of the patient costs, but we’re still missing $98,000.
The rarity of AKU means patients are scattered around the world, often faced with misdiagnosis, a lack of efficient care and a lack of awareness. This means we need patients from across Europe and beyond to run a good clinical trial. Our target is to recruit 140 patients. This may seem small, but for us it's a mountain we must climb.
Your money will help us to:
- Bring patients from across the world to our clinical trial centres. We believe patients shouldn't have to pay anything towards taking part and getting the help they need.
- Allow patients to bring carers with them. There is currently no
funding available for travel or accommodation for carers. As some of the
patients are extremely disabled, travelling long distances by
themselves can be extremely daunting.
- Help us care for them properly while they are on the trial, because many of them are very disabled and suffering. In some cases, we may need to hire specialist ambulances for those who are too disabled but still want to participate.
- Support the work of AKU Society, the patient group I run for people with Black Bone Disease. It will also help support our smaller sister societies across the world who are caring for our patients, by giving them the money they need to reach out to doctors and patients.
- Allow us to organise events across Europe for patients with Black Bone Disease in order to give patients everywhere access to information about the disease and the trials. For instance, in Slovakia many patients live in isolated rural communities with little access to modern communications, so its one of our only opportunities to inform them properly of the trials.
My vision is for our children never to have to suffer the pain of Black Bone Disease. With your help, we can make this a reality.
You can find out more about the devastating effects of Black Bone Disease by watching our AKU patient stories, updated regularly during the campaign.
Real Estate Latest News
BANGALORE: South-based film
financier and real estate investor PVP Ventures has emerged as the top
bidder to acquire majority shares of Goldman Sachs in India's second
Four Seasons hotel project in Bangalore. IT park developer RMZ Corp is a
close contend
Donald Trump ties up with Lodha for residential project in Mumbai ET 17 Sep 2013, 20:32 IST
Lodha Constructions did not abuse mkt dominance: CCI ET 17 Sep 2013, 16:42 IST
MUMBAI:
US-based business tycoon Donald Trump has tied up with Indian realty
player Lodha Group for a high-end real estate project in the metropolis.
The luxury residential project, called 'Trump Tower', will come up
inside Lodha's just launched 17.5 acr
NEW
DELHI: Competition watchdog CCI has dismissed the charges of abuse of
dominant market position against real estate developer Lodha Healthy
Constructions & Developers for residential apartments in Hyderabad.
"Since opposite party (Lodha Healthy) prima
PATNA:
Criminals, or the so-called 'dabangs' (strongmen), joining politics is
passe. Now, they are the lords of the real estate ring, playing a big
role in the booming construction business, particularly in and around
Patna. The alleged crime lords of Pa
Concentrated wealth is costing real estate dearly ET 16 Sep 2013, 06:22 IST
For
years, real estate has been a preferred investment in India. This was
driven by favourable demographics, shortage of housing, a move to
nuclear families, easy credit and increase in black money that required
storage. The RBI released excess liquidity
Real estate regulator bill back on track after technical glitch TOI 14 Sep 2013, 07:23 IST
NEW
DELHI: The legislation to set up a real estate regulator to protect
home buyers from unscrupulous developers and builders is back on track
after hitting a technical roadblock. The housing ministry, which piloted
the bill in Parliament, went jittery a
Akshay Kumar to buy multimillion dollar villas? TOI 13 Sep 2013, 08:57 IST
86 realtors show interest in Haryana housing proj ET 12 Sep 2013, 18:35 IST
If
it wasn't enough for him to be one of the big players of Bollywood,
Akshay Kumar is soon going to be uncrowned king of Goa real estate. We
saw him in Anjuna this week scouting for one of those multimillion
dollar villas we don't know anyone can afford
CHANDIGARH:
As many as 86 real estate companies, including DLF, Emaar MGF, Raheja
Developers have shown interest in developing Haryana government's most
ambitious affordable housing project in the state. Haryana's Town and
Country Planning Department has
Drop In Real estate Investment In Tamil Nadu
Drop in real estate investment in Tamil Nadu
CHENNAI: Tamil Nadu has registered a year on year drop of over 75% in attracting investments in the realty sector. New investments in the realty sector in the state dropped from Rs 13,600 crore to just over Rs 3,300 crore between 2011-12 and 2012-13, according to Assocham (The Associated Chambers of Commerce and Industry of India).
However, the good news is that TN has been ranked third with a share of about eight per cent in the total value of new investments attracted by the real estate sector across India during the last fiscal, according to Assocham. "States across India attracted new investments worth over Rs 42,000 crore in the real estate sector during 2012-13 which declined from over Rs 92,600 crore during 2011-12," DS Rawat, national secretary general, Assocham said.
While most of the states have seen a decline in attracting new investments in the realty sector, Gujarat has been an exception. The state has seen a surge of over 700% attracting investments worth over Rs 17,000 crore as on March 2013 from just over Rs 2,000 crore a year ago.
"Kerala is another state which has seen massive growth of over 550% in attracting new investments in the real estate sector followed by Uttarakhand (400%) and Rajasthan (175%)," Rawat said.
However, the good news is that TN has been ranked third with a share of about eight per cent in the total value of new investments attracted by the real estate sector across India during the last fiscal, according to Assocham. "States across India attracted new investments worth over Rs 42,000 crore in the real estate sector during 2012-13 which declined from over Rs 92,600 crore during 2011-12," DS Rawat, national secretary general, Assocham said.
While most of the states have seen a decline in attracting new investments in the realty sector, Gujarat has been an exception. The state has seen a surge of over 700% attracting investments worth over Rs 17,000 crore as on March 2013 from just over Rs 2,000 crore a year ago.
"Kerala is another state which has seen massive growth of over 550% in attracting new investments in the real estate sector followed by Uttarakhand (400%) and Rajasthan (175%)," Rawat said.
Find a Home to Buy
Find a Home to Buy
Buying a home can be an overwhelming process and emotionally draining. Finding the right home is not always an easy task. I advise buyers to look at a maximum of 7 homes at a time because any more than that will make a buyer's head spin.Most buyers conduct a lot of research online before ever stepping foot in a home. Buyers spend an average of 6 to 8 weeks, according to the National Association of REALTORS, trying to figure out where they want to live. But once the neighborhood is selected, most buyers end up buying a home after 2 or 3 home tours.
It's not always necessary to have a mortgage broker or bank in your back pocket before buying a home, but it's smarter to get loan preapproval in advance. This way you know for certain how much home to buy.
I once bought a home without financing in place when I made the offer. I was just lucky. Many sellers won't look at an offer if the seller doesn't have assurance that the buyer can get a loan.
Popular first-time buyer loans are FHA loans because the minimum down payment requirement is much less than a conventional loan. However, if you are thinking about buying foreclosures, for example, conventional buyers tend to get priority with REO banks.
You can ask your agent for a referral to a mortgage broker or check with your own bank / credit union. Compare the types of mortgages available to you and your GFE.
Negotiate the Offer
Buyers sometimes make the mistake of comparing the sales price of a home to other homes they have seen. It's a mistake to compare sales prices among homes for sale. That's because sellers can ask any price they want. It doesn't mean the home will sell at that price.An agent can provide comparable sales and examine the pending sales. Comparable sales are similar type homes in the same condition and location that have sold within the past 3 months. Pending sales will become the comparable sales by the time your home closes.
You may need to pay over list price in a seller's market, especially if many buyers are vying for the same inventory. Your agent can give you a reasonable price range and help to manage your expectations. An good buyer's agent knows there is always more to an offer than its price, but price is paramount.
Do a Home Inspection
In some states, a home inspection is conducted before buyers make a purchase offer. In other states, a home inspection is a contract contingency. A contract contingency means a buyer has the right to cancel the contract. You might not want to be locked in to buying a home that has a faulty foundation, for example.Sellers are generally not required to make repairs if problems are discovered during a home inspection. A home inspection is for the buyer's edification. However, sometimes when a buyer gives a Request for Repair to the seller, rather than blow the deal, the seller will often agree to make a repair.
Syed 9884342786
Why Chennai
Chennai is an amusing mix of tradition and
modernity as it is the only city that shows off both cosmopolitan
lifestyle and culture. Chennai, one of the major economic centers of the
country is mostly contributing to the country’s global rise. Due to the
rising IT companies, automobile companies, Chennai has always had a
very good potential. All credit goes to the brilliant infrastructure
development by both government and private bodies. To support the
existing intra city transport, the Chennai Metro rail project is being
proposed and no doubt the city is one of the coveted destinations for
investment.
Chennai has
excellent health, educational and infrastructural facilities. The city
possesses the best medical facilities in the country, with Apollo,
Vijaya and Shankar Netralaya to name a few. Earlier days Spencer Plaza
was the only mall people visited but today malls are being constructed
at different suburbs and people need not travel to one single
destination for shopping.
With business
brewing, the real estate firms are moving in to the city with
residential and commercial properties. With regard to residential
properties, the real estate firms in Chennai are coming up with new and
innovative projects with lavish international standard specifications
and state-of-the-art lifestyle amenities. These have totally transformed
the city in to flourishing residential hotspot.
So what are the
hot places to invest in Chennai? According to experts, South Chennai is
the good place to invest money as there is a lot of infrastructure
development and there are good chances of appreciation of properties.
South Chennai is buzzing with construction activities in residential,
commercial and retail sectors. Areas like Old Mahabalipuram Road (OMR),
Grand Southern Trunk Road (GST) road and Oragadam has got good potential
in terms of return on investment. Along GST Road, prestigious self
sustained township projects like Palm Riviera, Royal Castle, Temple
Waves, Heritage, Saffron Heights are offering high and low rise
apartments, penthouses, independent and luxurious bungalows, with
state-of-art commercial complexes, shopping malls, posh restaurants and
entertainment zones etc.
For NRI Information
For every Non
Resident Indians (NRIs) investing in real estate market always tops the
list of investment options. The capital appreciation potential of Indian
real estate market have been creating keen interest in Non Resident
Indians (NRIs) to invest back home. With huge developments happening in
not only most metros but also in many TIER I and TIER II cities across
the country, there is a common question prevailing among NRIs on where
to invest the hard earned money and fetch a good return on investment.
If you are one
among the NRI who wants to invest in India then no doubt the first query
that would linger in your mind is Where, How and Why? Let’s try to find
answer.
According to
experts, for investment perspective, Mumbai takes the lead in North
India and Chennai in South India. So what has made Chennai one of the
most preferred destinations in terms of real estate investments?
Chennai is an
amusing mix of tradition and modernity as it is the only city that shows
off both cosmopolitan lifestyle and culture. Chennai, one of the major
economic centers of the country is mostly contributing to the country’s
global rise. Due to the rising IT companies, automobile companies,
Chennai has always had a very good potential. All credit goes to the
brilliant infrastructure development by both government and private
bodies. To support the existing intra city transport, the Chennai Metro
rail project is being proposed and no doubt the city is one of the
coveted destinations for investment.
Chennai has
excellent health, educational and infrastructural facilities. The city
possesses the best medical facilities in the country, with Apollo,
Vijaya and Shankar Netralaya to name a few. Earlier days Spencer Plaza
was the only mall people visited but today malls are being constructed
at different suburbs and people need not travel to one single
destination for shopping.
With business
brewing, the real estate firms are moving in to the city with
residential and commercial properties. With regard to residential
properties, the real estate firms in Chennai are coming up with new and
innovative projects with lavish international standard specifications
and state-of-the-art lifestyle amenities. These have totally transformed
the city in to flourishing residential hotspot.
So what are the
hot places to invest in Chennai? According to experts, South Chennai is
the good place to invest money as there is a lot of infrastructure
development and there are good chances of appreciation of properties.
South Chennai is buzzing with construction activities in residential,
commercial and retail sectors. Areas like Old Mahabalipuram Road (OMR),
Grand Southern Trunk Road (GST) road and Oragadam has got good potential
in terms of return on investment. Along GST Road, prestigious self
sustained township projects like Palm Riviera, Royal Castle, Temple
Waves, Heritage, Saffron Heights are offering high and low rise
apartments, penthouses, independent and luxurious bungalows, with
state-of-art commercial complexes, shopping malls, posh restaurants and
entertainment zones etc.
Whatever you name
it, short, medium, long term or joint venture investment plan, Chennai
is definitely the safe and profitable city to make investment. Invest in
Chennai real estate, the city with tremendous potential and enjoy the
good, stable and risk free investment for the future.
Give us an overview of Chennai's real estate scenario?
What To Look Out For While Buying a Home
In the last four to five years Chennai has witnessed more than 10
million sq. ft of quality IT SEZ supply. Occupier sentiments are
improving as the global economy recovers and corporates have shown a
clear preference for quality office spaces with reasonable rents. In the
last quarter, approx 2.4 million sq. ft of office space came into
supply and almost 94 per cent of the leasing activity was registered for
Grade A stock.
The residential sector continues to see some robust investment by local
and national developers where few developers cumulatively have invested
more than Rs.1,000 crore in land in the last one year primarily for
residential development. Interestingly, this Rs. 1,000 crore investment
made by few developers and fund houses have been in city locations where
the overall supply compared to peripheral location is low. Developers
sense a demand for luxury segment as enquiries for up market addresses
like Poes Garden, Boat Club and Nungambakkam have historically remained
high.
Moreover, overall supply in this up market or luxury segment would be
much less compared to that of peripheral locations. In the peripheral
areas of Chennai, unsold units are on the rise. While the manufacturing
and automobile sector had played a significant role in the city’s
economy growth over the years, the last two years have seen a dip in
demand. Dearth of land in existing SIPCOT industrial parks –
Sriperambadur and Oragadam have added to this.
Will there be a price correction or will the prices go up?
In the residential sector, sales are expected to improve as overall
housing demand has increased in the city. This is mainly due to
improvements in infrastructure, rise in income levels and increasing
employment opportunities in all sectors. Most of the micro markets are
expected to maintain stable capital value trends. In the mid-end
segment, Adyar, Mylapore and Velachery may witness an increase in
capital values in the long term due to inherent demand from business
class and HNI individuals. Velachery, in particular has seen a 40 per
cent rise in capital values on a year-on-year basis as improvements in
infrastructure and the ongoing metro work will provide better
connectivity and prices are witnessing an upward trend in this micro
market.
In the high-end category, R.A.Puram and neighbouring areas of Alwarpet
and Abhiramapuram saw a 5 per cent increase in capital values this year
and may continue to increase, as demand remains strong in these pockets.
At present, four or five major high-end projects are under construction
around CBD (Central Business District) areas, with apartment sizes
ranging between 3,000 – 4, 000 sq. ft. These are priced in the range of
Rs. 7.5 – 10 crore and will provide capital appreciation in the future.
In summary, the trend of unsold units in the some parts of OMR and GST continues, price correction in these locations is
natural and in the city since the launches of these high projects will
come in phased manner, the demand for high end segment will hold up the
price.
When is a good time to invest?
Investments in residential properties are dependent on the time horizon
and an investor’s risk appetite. For short to medium term, investing in
Anna Nagar, Adyar, Velachery and Nungambakkam are good choices as
projects in these micro markets find takers quickly and most known
developers have been able to sell their units while still under
construction. For medium to long term, peripheral stretch of OMR and GST
are good options, however the current situation of unsold units is on
the rise in some of projects in these locations. Therefore developers
are largely dependent on end user and investors who invest for rental
yields.
Which areas in Chennai have the most potential for growth over the next ten years?
From a residential perspective, OMR and GST in a long term will continue
to be an attractive proportion for middle income group. High-end supply
which caters to upper income group is in locations like Nungambakkam,
Boat club, Poes Garden and ECR.
What advice would you give home buyers? What should they look out for before buying a home?
With the approval of the Real Estate Regulatory Bill, the developer
community is expected to be more transparent and accountable; however,
home buyers must only invest in housing projects where all the necessary
approvals are in place. Before investing in a house one should also
check the title deeds and ensure there are no disputes on land titles.
Investing in projects with developers with a good track record and no
delays in construction completions helps ensure the developer’s
credibility and makes the investment less risky and relatively “safe”.
Hariharan has been in the commercial leasing business in Chennai for
over 11 years. He also has experience in the financial and telecom space
and has worked across realty markets in cities like Chennai,
Coimbatore, Kochi, Trivandrum and Colombo. To Call Any Time 9884342786
Why Invest In Oragdam?
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| .Unlimited Enployment Opportunites More than 22 "Fortune 500" companies - Motorola, Dell, Samsung, Nokia, Apollo, Renault and Ford. .Good Infrastructure Well connected via road and rail. TN Govt investng Rs 300-crore to build Oragadam Industrial Corridor Road. Ease of Access from NH4 and GST. .Educational Insitutes Apollo Polytechnic College, Shri Krishna Engineering College and Raasi College of Engineering, Dhaanish Ahamed college of Engineering, Vidyashram CBSE School. .Banking Institutions UBI, Bank of Baroda, India Overseas Bank, UBI etc.
Loan Eligible-Oragadam (Asia No.1 Automobile HUB) DTCP Approved Plots. Hurry for Booking!
We sincerely thank for the interest shown with me and our company for investing the best returns on earth. Millennium Square The astonishing project known as Millennium Square is strategically located at Oragadam, surrounded by many industries, educational institutions, tourist attraction etc., This fully developed DTCP approved plots with modern amenities and sophisticated infrastructure will provide the residents a fabulous and opulent lifestyle, you can visualize the stunning modern city wherein one could get rid of the pollution prevailing in the existing city atmosphere. Well Developed Layout | black Top Roads | Community Hall | Parks | Concrete Compound Wall for the Layout | Availability of Good Ground Water | DTCP Approved Layout | Easy Accessibility to Bus Stop | Excellent Return on Investment Millennium Square is located at Oragadam on the Bangalore Chennai highway in the outskirts of Chennai and strategically designed on a site area of 11.5 acres. The Millennium Square is well connected with wide well networked roads that make to travel from the city easy and comfortable. In addition, you could blissfully experience the Dew Pond, Club House, Children's play area, Compound Wall and other facilities of International Standard in the Millennium Square. WHY ORAGADAM? Oragadam has been touted as Chennai’s largest and the most developed industrial belt with over 22 Fortune 500 Companies of which six global car manufacturers, the Sriperumbudur-Oragadam belt has seen tremendous industrial growth in less than 4 years. This area is well connected via road and rail, and according to industrial experts, the presence of automobile giants like Renault-Nissan and Ford has triggered growth around Oragadam. Several manufacturing giants such as Motorola, Dell, Flextronics, Samsung, Nokia, Apollo Tyres and TVS Electronics, have set up their respective units in the industrial belt stretching from Sriperumbudur to Oragadam. In addition, JCBL Ltd, Essar Steel, BPCL, Delphi TVS Diesel Systems Ltd, GE Bayer, Silicons (India) Pvt Ltd have also set up their businesses in SIPCOT Industrial Park, Oragadam. DHL is also reported to be setting up its first Free Trade Warehousing Zone at Sriperumbudur. US$539 million project which will enhance the connectivity between NH4 and NH45 road and State Highway 48 which connects Vandalur & Walajhabad. Rail Connecting city: SOUTHERN Railway planning to connect entire region to city, US$1438 million project running 55km distance will connect Avadi, Sriperumbudur, Oragadam and Guduvanchery Outer Ring Road; US$1882 million project mainly along the peripheries of West & South Chennai to reduce the congestion. Necessary approval and land acquisitions are completed for Green Field Airport developing in 5000 acres with an estimated budget of US$1.3 billion is just 15 min away from Oragadam. Companies in and around Millennium Square Allison | Apollo Tyres | Asian Paints Limited | Axon Technologies, Mathur | Daimler India Commercial vehicles | Delphi Automotive Systems Pvt Ltd | Global Automotive Research Centre | JCBL Marrel Tippers | KUBS Safes and Locks Pvt Ltd | Komatsu | Mohan Mutha Infrastructures Pvt Ltd | Momentive Performance Material (India) Pvt Ltd | Motherson Automotive Elastomers | Nokia Siemens Networks | Nokia SEZ | Proaxir Industries Ltd | Posco-ICPC | Renault Nissan Automotive Pvt Ltd | Sanmina-Sci | SDP Telecom Private Ltd | Steel Strips Wheels Ltd | Sundaram Hydraulics | Sundaram Auto Components Ltd | Unipres India Private Limited and many more companies / industries located at Oragadam. Phase I = Rs.780 / sq.ft Phase II = Rs.815 / sq.ft Phase III = Rs.840 / sq.ft *Loan Available Payment Schedule Day 1 - Rs.1,00,000 /- Day 10 - 20% of the Plot Cost. Day 30 - Rest of the Total Plot Cost Registration Fee (8%) Documentation Charges Rs.5000 We are very much glad in providing all the required details and shall promise to provide our best of services in this regard and for all future correspondences as well. Thanks & Regards, Vip Housing 17/1 Nungambakkam Mahalingapuram Chennai 34 9884342786 |
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